This month, The Arc’s blog will feature a Q&A with members of The Arc’s national office staff to help raise awareness of issues important to the IDD community during Developmental Disabilities Awareness Month. Laurie Ertz is the Director of Chapter Excellence and works with our national network of 700_ chapters to give them the tools and resources they need to better serve people with IDD.

Q. Laurie, you recently helped launch The Arc’s National Council of Self Advocates. Why is it important to have people with intellectual and developmental disabilities in leadership roles at The Arc.

A. People with intellectual and developmental disabilities (IDD), whether they identify as self advocates or not, are quite simply the only people who can tell us what truly matters to them. As much as the people who love and support them care about their well-being, that caregiver cannot completely put him or herself in the shoes of a person with an intellectual or developmental disability. So, as an organization, we need to fully include people with IDD, especially in leadership roles to even hope to move forward toward our goal. It’s all about perspective and the unique perspective of an individual with IDD is the most valuable resource we have as a movement.

“[They] are quite simply the only people who can tell us what truly matters to them.”

The National Council of Self Advocates was developed to ensure that individuals with IDD have a clear voice in creating lives that allow them meaningful choices for a promising future. It’s designed to help them be leaders in their communities, share their values of self determination and help educate their communities about IDD. We invite anyone with IDD who is a member of The Arc to participate in or contribute to the Council and let us hear your voice!